On infighting over “Aspergers Syndrome”

“Aspergers syndrome” is a hot topic on autistic social media right now. There are some vicious battles raging about this.

How autism and the specific profiles within the spectrum are diagnosed has been and still is evolving over the years, and differently in different countries. The DSM5 is US-specific.

I’m in the UK, and my diagnostic assessment says “Aspergers Syndrome”. The guidelines here now steer away from specific pigeon holes and towards “Autistic Spectrum Disorder”, but not all diagnosticians have caught up.

I know Aspergers just means autism without the learning disabilities and the delayed language development. I know I don’t have the same severity of problems and support needs as my autistic brother, who has learning disabilities. We do have the same rights to be included and supported.

I do have impairments that make my day to day life harder, and medical issues that are part and parcel of autism. I consider it a disability for me, but there are some advantages too, and it makes me who I am. I need acceptance, reasonable adjustments and support. And sometimes medication for co-occurring mental and physical health issues.

It is my prerogative to accept this about myself, and to declare myself disabled. If others don’t see it that way, whether they are neurodiversity-sceptic or positive about their autism, then that’s their prerogative. There is a spectrum of opinions about this, not just polar extremes.

My main point is, I’m sick of all the infighting, and this trolling and dog piling is intolerable and unacceptable. It is making people ill, and in some cases suicidal.

I think the autistic community should pull together, even when we have differing opinions.

Author: Charlie Hart

Late-diagnosed autistic working mum, attempting to write an amusing semi-autobiographical novel with a twist.

6 thoughts on “On infighting over “Aspergers Syndrome””

  1. My psychologist told me I had Asperger’s Syndrome too. This was in 2013 after the Guardian had reported that Asperger’s no longer existed. They were reporting the diagnostic criteria in the USA which were not in force in the UK. I am not sure is they are in force in the UK now or not.

    I have heard that ASC is being used by some outside the USA, replacing the word Disorder with Condition. I am pleased by this as I have autism but I am not disordered.

    I will not use ASD, it is a trem of abuse. We are different but not disordered.

    Liked by 1 person

  2. i have aspergers and m.e .i take part in a lot lot research
    my blog,http;//mark-kent.webs.com
    twitter,supersnopper
    Linkedin,AutismDad

    Like

  3. Charlie, your blog will soon be added to our Actually Autistic Blogs List (anautismobserver.wordpress.com). Please click on the “How do you want your blog listed?” link at the top of that site to customize your blog’s description on the list (or to decline).
    Thank you.
    Judy (An Autism Observer)

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s